The central thesis of this book is that access to information represents a vital aspect of contemporary society, encompassing participation, accountability, governance, transparency, the production of products, and the delivery of services. This view is widely shared, with commentators and scholars agreeing that access to information is a key factor in maintaining societal and economic stability. However, having access to information does not guarantee its accessibility. Assuming that information is (cognitively) interpretable is incorrect, as many practical examples illustrate. In the first chapter, this book offers insights into the challenge of access to information in a digitalized world. The concepts of access and accessibility are addressed, elucidating their meanings and delineating the ways in which they are influenced by the exponential growth of information. It examines how information technology introduces a novel access paradox. The second chapter examines the challenges to access to and accessibility of information in a digitalized, hybrid world where code may be law, where there is an inescapable loss of privacy, where doing business opens and restricts access, where literacy is a necessity to survive ‘digital divides,’ and where environmental concerns may have an adverse effect on high expectations. The third chapter presents a review of theoretical approaches to access and accessibility from seven different research perspectives: information access disparity, information seeking, information retrieval, information quality, information security, information management, and archives management. Six approaches to information access and accessibility are identified: [1] social, economic, and political participation; [2] ‘smart’ and evolving technology; [3] power and control; [4] sense-making; [5] knowledge representations, and [6] information survival. The fourth chapter addresses the bottlenecks and requirements for information access and accessibility, culminating in a checklist for organizations to assess these requirements within their own business processes. In the fifth chapter, some perspectives on artificial intelligence and the future of information access are presented. The sixth chapter represents an attempt to draw conclusions and to bring this book to a close.
ObjectiveTo obtain insights into parents' information needs during the first year at home with their very preterm (VP) born infant.MethodsWe conducted semi-structured interviews with parents of VP infants participating in a post-discharge responsive parenting intervention (TOP program). Online interviews were audiotaped and transcribed verbatim. Inductive thematic analysis was performed by two independent coders.ResultsTen participants were interviewed and had various and changing information needs during the developmental trajectory of their infant. Three main themes emerged; (1) Help me understand and cope, (2) Be fully responsible for my baby, and (3) Teach me to do it myself. Available and used sources, such as the Internet, did not meet their information needs. Participants preferred their available and knowledgeable healthcare professionals for reassurance, tailored information, and practical guidance.ConclusionThis study identified parents' information needs during the first year at home with their VP infant and uncovered underlying re-appearing needs to gain confidence in child-caring abilities and autonomy in decision-making about their infants' care.InnovationThis study provides valuable information for healthcare professionals and eHealth developers to support parental self-efficacy during the first year after preterm birth.
This paper essentially presents an exploration of the relationship between organizational culture and information systems management. Three contributions are offered namely the findings of a study of the organizational culture and information management competencies of five organizations in the Netherlands, with particular reference to the reliability of the measurements tool that was used, as well as an exploratory study of the relationship between organizational culture and the ability of an organization to manage its information systems. A brief review of the literature reveals that these two concepts in combination have been studied extensively, but that their conceptualization are somewhat fragmented in nature. In an effort to study the relationship using a more inclusive frame of reference the paper then presents a description of two models that were used the foundation for the design of a measurement tool to investigate the topic. The results provides a description of the general culture and information systems management abilities of the organizations and also suggest that the measurement tool is indeed reliable. Further analysis reveals that several variables from within each of the two main concepts, organizational culture and information systems management, are correlated.
