Websites placing cookies on your computer to track your browsing behavior. TikTok stores your personal data in China. Are you aware of what products, services, and organisations do with your personal data? It is often not obvious. Our digital lives are becoming more and more prominent. We are now meeting each other virtually for work and leisure, and are spotted and traced without our knowledge, both in physical places (public areas and streets) and in virtual spaces. Technology is developing rapidly and policy makers are not able to keep up, resulting in unknown threats for citizens in modern society. Moreover, technology can lead to inequality and exclusion, as demonstrated in the Dutch childcare benefits scandal. The aim of the Inholland Digital Rights Research Team, co-founded by Professors Wina Smeenk, Ander de Keijzer and Ben Wagner, is to focus their work on the social, economic, cultural, communication, design and technological elements that can lead to a digitally responsible society. This means that we want to be part of the debate and research on how technology in our digital age can contribute to the quality of peoples’ lives: how can people benefit from the digital society and how are they hindered, or even worse, excluded from partaking in our digital society. We do this in our research lines, as well as in the sustainable media lab courses and the data-driven minor.
Can you remember the last time the ground gave way beneath you? When you thought the ground was stable, but for some reason it wasn’t? Perhaps you encountered a pothole on the streets of Amsterdam, or you were renovating your house and broke through the floor. Perhaps there was a molehill in a park or garden. You probably had to hold on to something to steady yourself. Perhaps you even slipped or fell. While I sincerely hope that nobody here was hurt in the process, I would like you to keep that feeling in your mind when reading what follows. It is the central theme of the words that will follow. The ground beneath our feet today is not as stable as the streets of Amsterdam, your park around the corner or even a poorly renovated upstairs bedroom. This is because whatever devices we use and whatever pathways we choose, we all live in hybrid physical and digital social spaces (Kitchin and Dodge 2011). Digital social spaces can be social media platforms like Twitter or Facebook, but also chat apps like WhatsApp or Signal. Crucially, social spaces are increasingly hybrid, in which conversations take place across digital spaces (WhatsApp chat group) and physical spaces (meeting friends in a cafe) simultaneously. The ground beneath our feet is not made of concrete or stone or wood but of bits and bytes.
Basic human rights, like freedom of expression, freedom of the press, and privacy, are being radically transformed by new technologies. The manifestation of these rights in online spaces is known as “digital rights,” which can be impeded or empowered through the design, governance, and litigation of emerging technologies. Design defines how people encounter the digital world. Some design choices can exploit the right to privacy by commodifying attention through tactics that keep users addicted to maximize profitability; similar design mechanisms and vulnerabilities have facilitated the abuse of journalists and human rights advocates across the globe. But design can also empower human rights, providing novel tools of resistance, accountability, and accessibility, as well as the inclusion of previously underserved voices in the development process. The new capabilities offered by these technologies often transcend political boundaries, presenting complex challenges for meaningful governance and regulation. To address these challenges, collaborations like the Internet Governance Forum and NETmundial have brought together stakeholders from governments, nonprofits, industry, and academia, with efforts to address digital rights like universal internet access. Concurrently, economic forces and international trade negotiations can have substantial impacts on digital rights, with attempts to enforce steeper restrictions on intellectual property. Private actors have also fought to ensure their digital rights through litigation. In Europe, landmark cases have reshaped the international management of data and privacy. In India, indefinite shutdowns of the internet by the government were found to be unconstitutional, establishing online accessibility as a fundamental human right, intimately tied with the right to assembly. And in Africa, litigation has helped ensure freedom of speech and of the press, rights that may affect more individualsas digital technologies continue to shape media. These three spheres—design, diplomacy, and law—illustrate the complexity and ongoing debate to define, protect, and communicate digital rights. Om het artikel te kunnen lezen moet het gekocht worden: https://oxfordre.com/internationalstudies/display/10.1093/acrefore/9780190846626.001.0001/acrefore-9780190846626-e-694?rskey=n09nus&result=4
In veel Afrikaanse landen zien we een inperking van de maatschappelijke ruimte (‘civic space’). Deze ruimte is cruciaal om in democratische staten transparantie, vrijheid van meningsuiting en verantwoording van bestuur te realiseren. In een steeds sterke digitaliserende maatschappij wordt toegang tot digitale middelen een mensenrecht. Daar waar regeringen proberen hun burgers en organisaties dat recht tot digitale informatievoorziening en –uitwisselingen te ontnemen komen de Sustainable Development Goals in het gedrang. Doel African Digital Rights Network (ADRN) wil inzicht verkrijgen in de stakeholders ne technologieën die betrokken zijn net het openen of onderdrukken van de online maatschappelijke ruimte (‘civic space’). Het netwerk beoogt bij te dragen aam empowerment van burgers om hun digitale mensenrechten uit te oefenen. Resultaten ADRN heeft een vergelijkende studie van 10 Afrikaanse landen uitgevoerd naar het gebruik van digitale technologieën voor het openen of onderdrukken van de online maatschappelijke ruimte (‘civic space’). Het project heeft onder andere geleidt tot de volgende publicatie: Mapping the Supply of Surveillance Technologies to Africa: Case Studies from Nigeria, Ghana, Morocco, Malawi, and Zambia Looptijd 01 mei 2020 - 20 april 2021 Aanpak ADRN organiseert een netwerk van onderzoekers, analisten, digitale rechtenorganisaties en activisten om de dynamiek van het openen en onderdrukken van de digitale maatschappelijke ruimte in kaart te brengen. Het netwerk bouwt op een interdisciplinaire onderzoeksaanpak o.l.v. het Institute for Development Studies, een vooraanstaand onderzoeksinstituut. Relevantie van het project Het onderzoek leidt tot aanbevelingen voor o.a. beleidsmakers en maatschappelijke organisaties ter bevordering van de digitale maatschappelijke ruimte. Daarnaast worden digitale tools en trainingsmateriaal gefaciliteerd voor het monitoren van ontwikkelingen en dreigingen van de digitale maatschappelijke ruimte. CofinancieringDit onderzoek wordt gefinancierd door UKRI - GCRF Digital Innovation for Development in Africa (DIDA)Meer weten? UKRI GCRF: African Digital Rights Network Website ADRN
In veel Afrikaanse landen zien we een inperking van de maatschappelijke ruimte (‘civic space’). Deze ruimte is cruciaal om in democratische staten transparantie, vrijheid van meningsuiting en verantwoording van bestuur te realiseren. In een steeds sterke digitaliserende maatschappij wordt toegang tot digitale middelen een mensenrecht. Daar waar regeringen proberen hun burgers en organisaties dat recht tot digitale informatievoorziening en –uitwisselingen te ontnemen komen de Sustainable Development Goals in het gedrang. Doel African Digital Rights Network (ADRN) wil inzicht verkrijgen in de stakeholders ne technologieën die betrokken zijn net het openen of onderdrukken van de online maatschappelijke ruimte (‘civic space’). Het netwerk beoogt bij te dragen aam empowerment van burgers om hun digitale mensenrechten uit te oefenen. Resultaten ADRN heeft een vergelijkende studie van 10 Afrikaanse landen uitgevoerd naar het gebruik van digitale technologieën voor het openen of onderdrukken van de online maatschappelijke ruimte (‘civic space’). Looptijd 01 mei 2020 - 20 april 2021 Aanpak ADRN organiseert een netwerk van onderzoekers, analisten, digitale rechtenorganisaties en activisten om de dynamiek van het openen en onderdrukken van de digitale maatschappelijke ruimte in kaart te brengen. Het netwerk bouwt op een interdisciplinaire onderzoeksaanpak o.l.v. het Institute for Development Studies, een vooraanstaand onderzoeksinstituut. Relevantie van het project Het onderzoek leidt tot aanbevelingen voor o.a. beleidsmakers en maatschappelijke organisaties ter bevordering van de digitale maatschappelijke ruimte. Daarnaast worden digitale tools en trainingsmateriaal gefaciliteerd voor het monitoren van ontwikkelingen en dreigingen van de digitale maatschappelijke ruimte. CofinancieringDit onderzoek wordt gefinancierd door UKRI - GCRF Digital Innovation for Development in Africa (DIDA)Meer weten? UKRI GCRF: African Digital Rights Network Website ADRN
The project aims to improve palliative care in China through the competence development of Chinese teachers, professionals, and students focusing on the horizontal priority of digital transformation.Palliative care (PC) has been recognised as a public health priority, and during recent years, has seen advances in several aspects. However, severe inequities in the access and availability of PC worldwide remain. Annually, approximately 56.8 million people need palliative care, where 25.7% of the care focuses on the last year of person’s life (Connor, 2020).China has set aims for reaching the health care standards of the developed countries by 2030 through the Healthy China Strategy 2030, where one of the improvement areas in health care includes palliative care, thus continuing the previous efforts.The project provides a constructive, holistic, and innovative set of actions aimed at resulting in lasting outcomes and continued development of palliative care education and services. Raising the awareness of all stakeholders on palliative care, including the public, is highly relevant and needed. Evidence based practice guidelines and education are urgently required for both general and specialised palliative care levels, to increase the competencies for health educators, professionals, and students. This is to improve the availability and quality of person-centered palliative care in China. Considering the aging population, increase in various chronic illnesses, the challenging care environment, and the moderate health care resources, competence development and the utilisation of digitalisation in palliative care are paramount in supporting the transition of experts into the palliative care practice environment.General objective of the project is to enhance the competences in palliative care in China through education and training to improve the quality of life for citizens. Project develops the competences of current and future health care professionals in China to transform the palliative care theory and practice to impact the target groups and the society in the long-term. As recognised by the European Association for Palliative Care (EAPC), palliative care competences need to be developed in collaboration. This includes shared willingness to learn from each other to improve the sought outcomes in palliative care (EAPC 2019). Since all individuals have a right to health care, project develops person-centered and culturally sensitive practices taking into consideration ethics and social norms. As concepts around palliative care can focus on physical, psychological, social, or spiritual related illnesses (WHO 2020), project develops innovative pedagogy focusing on evidence-based practice, communication, and competence development utilising digital methods and tools. Concepts of reflection, values and views are in the forefront to improve palliative care for the future. Important aspects in project development include health promotion, digital competences and digital health literacy skills of professionals, patients, and their caregivers. Project objective is tied to the principles of the European Commission’s (EU) Digital Decade that stresses the importance of placing people and their rights in the forefront of the digital transformation, while enhancing solidarity, inclusion, freedom of choice and participation. In addition, concepts of safety, security, empowerment, and the promotion of sustainable actions are valued. (European Commission: Digital targets for 2030).Through the existing collaboration, strategic focus areas of the partners, and the principles of the call, the PalcNet project consortium was formed by the following partners: JAMK University of Applied Sciences (JAMK ), Ramon Llull University (URL), Hanze University of Applied Sciences (HUAS), Beijing Union Medical College Hospital (PUMCH), Guangzhou Health Science College (GHSC), Beihua University (BHU), and Harbin Medical University (HMU). As project develops new knowledge, innovations and practice through capacity building, finalisation of the consortium considered partners development strategy regarding health care, (especially palliative care), ability to create long-term impact, including the focus on enhancing higher education according to the horizontal priority. In addition, partners’ expertise and geographical location was also considered important to facilitate long-term impact of the results.Primary target groups of the project include partner country’s (China) staff members, teachers, researchers, health care professionals and bachelor level students engaging in project implementation. Secondary target groups include those groups who will use the outputs and results and continue in further development in palliative care upon the lifetime of the project.
