This scoping review aims to provide an overview of available research on the functioning of a patient with lipedema, according to the ICF framework in terms of body functions, body structures, activities, participation, personal and environmental factors.
MULTIFILE
Background: In Europe, cardiovascular disease is one of the predominant causes of mortality and morbidity among older people over 65 years. The occurrence of cardiovascular disease can have a negative impact on the quality of life of older patients and their families and family health overall. Assuming that illness is a family affair shaped by culture and health care systems, we explored European health care practices and interventions toward families of older patients with cardiovascular disease and heart failure.Aims: This paper aimed to determine the extent, range, and variety of practices and interventions in Europe directed to families of older patients and to identify knowledge gaps.Materials & Methods: A scoping review was conducted including studies published in Medline, CINHAL, or Cochrane library between 2009 and mid-2020.Results: A total of 22 articles from 17 studies were included, showing diverse practices and interventions. The interventions targeted the family as a unit (six studies), dyads (five studies), patients alone, but assessed family members’ reactions (five studies) or the family member primarily, but assessed the reaction of the patient (one study). Target outcomes were family caregiver burden; health-related QoL; and perceived control in patients; and family functioning and changes in health behavior or knowledge in both, family members and patients. Most studies did not include an integral view of the family as the unit of care but rather had a disease-centered approach.Discussion: This scoping review provides insight into a variety of healthcarepractices towards families of older patients with cardiovascular disease in Europe. Clarifying underlying assumptions to involve families is needed. More studies with family-focused approaches as integral models could lead to practices that improve families’ well-being. Exploring integral models for their acceptance in health care and family systems appears pertinent to develop European policy to support and add to family health.
The definition of ‘Assistive Technology’ (AT) includes both assistive products and the services or actions necessary for safe and effective provision of the assistive products to people who need them. International standards and product specifications exist for assistive products. Despite huge unmet need for effective AT provision, a variety of service delivery models across different countries, and a shortage of personnel trained in this field, nowidely useable and accepted AT service provision guidelines currently exist. Aligned with contemporary global initiatives to improve access to AT, a scoping review was commissioned to inform the development of globally useable provision guidance. The aim was to deliver a rapid scoping review of the literature regarding quality guidelines for AT service provision. Method: The rapid scoping review utilised a two-tiered approach to identifying relevant publications: 1) systematic search of academic databases; 2) consultation with assistive technology organisations. The review was conducted in March 2023 across four databases (Medline, CINAHL, SCOPUS and Google Scholar) with no date limitations. Systematic outreach to international and global AT networks was used to access expert informants. Non-English publications were included utilizing Google Translate and support from expert informants to verify content. Analysis was guided by the body of work on quality AT provision and service delivery processes in Europe, as well as the World Health Organization-GATE 5P framework for strengthening access to AT. Results: The search strategies yielded 41 publications from diverse countries, and directed at differing assistive products, personnel and provision contexts. Results are reported from the charted data through to the data extraction framework, including type of publication, study design, audience and reach. We report on the type of AT and the AT provision ecosystem elements discussed, and service delivery process or steps and quality criteria service delivery. Conclusion: This review did not find established guidelines or standards for service provision, but it did identify key service delivery steps which may form part of such guidelines, and many of the 3 publications included mentioned the need for practice guidelines. Despite different contexts such as type of assistive product, recipient of the guidance, language, location and authorship, core elements of AT provision including service delivery steps can be identified. Consideration regarding the nuances of vocabulary, of process, and of enabling flexible foci, is recommended in systematizing globally applicable guidance. This review offers a strong starting point for developing guidance for assistive technology provision to meet global need.
Begin 2022 heeft het Kenniscentrum Sociale Innovatie een drietal brainstormbijeenkomsten georganiseerd met experts op het gebied van ervaringsdeskundigheid. Aan deze bijeenkomsten namen o.a. hoogleraren, onderzoekers, ervaringsdeskundige beleidsmedewerkers en zorgverzekeraar deel. Uit deze bijeenkomsten volgde de concrete opdracht om literatuuronderzoek te doen naar de evidentie van ervaringsdeskundigheid (waarde, effect en werkzame elementen).Doel Zicht krijgen op de evidentie van ervaringsdeskundigheid in diverse contexten middels een scoping review. Resultaten Overzicht over bestaande evidentie van ervaringsdeskundigheid beschreven in een publicatie. Looptijd 01 mei 2022 - 01 december 2022 Aanpak Er zal literatuuronderzoek in de vorm van een scoping review worden uitgevoerd. Samenwerking met kennispartners Movisie Lectoraat GGZ en Samenleving van het Windesheim Trimbos InBegrepen
Begin 2022 heeft het Kenniscentrum Sociale Innovatie een drietal brainstormbijeenkomsten georganiseerd met experts op het gebied van ervaringsdeskundigheid. Aan deze bijeenkomsten namen o.a. hoogleraren, onderzoekers, ervaringsdeskundige beleidsmedewerkers en zorgverzekeraar deel. Uit deze bijeenkomsten volgde de concrete opdracht om literatuuronderzoek te doen naar de evidentie van ervaringsdeskundigheid (waarde, effect en werkzame elementen).
Begin 2022 heeft het Kenniscentrum Sociale Innovatie een drietal brainstormbijeenkomsten georganiseerd met experts op het gebied van ervaringsdeskundigheid. Aan deze bijeenkomsten namen o.a. hoogleraren, onderzoekers, ervaringsdeskundige beleidsmedewerkers en zorgverzekeraar deel. Uit deze bijeenkomsten volgde de concrete opdracht om literatuuronderzoek te doen naar de evidentie van ervaringsdeskundigheid (waarde, effect en werkzame elementen).Doel Zicht krijgen op de evidentie van ervaringsdeskundigheid in diverse contexten middels een scoping review. Resultaten Overzicht over bestaande evidentie van ervaringsdeskundigheid beschreven in een publicatie. Looptijd 01 mei 2022 - 01 december 2022 Aanpak Er zal literatuuronderzoek in de vorm van een scoping review worden uitgevoerd. Samenwerking met kennispartners Movisie Lectoraat GGZ en Samenleving van het Windesheim Trimbos InBegrepen
