Zoekresultaten

Development and validation of a patient decision aid for prostate Cancer therapy

Background: Patient decision aids (PDAs) can support the treatment decision making process and empower patients to take a proactive role in their treatment pathway while using a shared decision-making (SDM) approach making participatory medicine possible. The aim of this study was to develop a PDA for prostate cancer that is accurate and user-friendly. Methods: We followed a user-centered design process consisting of five rounds of semi-structured interviews and usability surveys with topics such as informational/decisional needs of users and requirements for PDAs. Our userbase consisted of 8 urologists, 4 radiation oncologists, 2 oncology nurses, 8 general practitioners, 19 former prostate cancer patients, 4 usability experts and 11 healthy volunteers. Results: Informational needs for patients centered on three key factors: treatment experience, post-treatment quality of life, and the impact of side effects. Patients and clinicians valued a PDA that presents balanced information on these factors through simple understandable language and visual aids. Usability questionnaires revealed that patients were more satisfied overall with the PDA than clinicians; however, both groups had concerns that the PDA might lengthen consultation times (42 and 41%, respectively). The PDA is accessible on http://beslissamen.nl/. Conclusions: User-centered design provided valuable insights into PDA requirements but challenges in integrating diverse perspectives as clinicians focus on clinical outcomes while patients also consider quality of life. Nevertheless, it is crucial to involve a broad base of clinical users in order to better understand the decision-making process and to develop a PDA that is accurate, usable, and acceptable.

Task shifting, interprofessional collaboration and education in oral health care.

Het doel van dit proefschrift betrof het verkennen van attituden en afwegingen rond taakherschikking tussen tandartsen en mondhygiënisten. Daarnaast werd nagegaan welke sociale kenmerken studenten toeschrijven aan elkaar, zichzelf en beide beroepsgroepen. Vervolgens werd het effect van een psychologische interventie in een onderwijssetting onderzocht op interprofessionele communicatie en percepties ten aanzien van interprofessionele taakverdeling. Tandartsen en mondhygiënisten hebben verschillende attituden ten opzichte van taakherschikking, vooral wat betreft de vrijgevestigde praktijk van mondhygiënisten. Dit laatste wordt het minst gewenst door tandartsen. Tandartsen en mondhygiënisten hebben verschillende afwegingen wanneer men een voor- of tegenstander is van dit beleid. De interprofessionele relatie tussen tandartsen en mondhygiënisten komt tot uiting in de attributie van specifieke sociale kenmerken. Tandheelkunde en mondzorgkunde studenten zijn beide de mening toegedaan dat tandartsen meer dominant zijn dan mondhygiënisten. Het faciliteren van interprofessionele groepsvorming kan zowel interprofessionele hiërarchie als tandarts-gecentreerde taakverdeling reduceren. Tijdens het eerste onderzoek (Hoofdstuk 2) werden verschillen tussen tandartsen en mondhygiënisten ontdekt ten aanzien van de taakuitbreiding van de mondhygiënist. De helft van alle tandartsen en de meeste mondhygiënisten hebben hierover een positieve attitude. Een interprofessionele kloof werd gevonden ten aanzien van de zelfstandige praktijkvoering van mondhygiënisten. Een minderheid van alle tandartsen heeft hierover een positieve attitude vergeleken met een meerderheid van alle mondhygiënisten. Dit suggereert dat de acceptatie van een zelfstandige mondhygiënist een groot obstakel is wanneer men taakherschikking wil implementeren. Tandartsen willen controle over de mondhygiënist behouden, daarom is het waarschijnlijk dat taakdelegatie boven taaksubstitutie wordt verkozen. Dit laatste betreft taakherschikking met professionele autonomie.

Preparing researchers for patient and public involvement in scientific research

Background: Acquiring the theoretical and practical knowhow of conducting patient and public involvement (PPI) in research is not part of the traditional curriculum of researchers. Zuyd University of Applied Sciences and Huis voor de Zorg, a regional umbrella patient organization, therefore started a 1.5-year coaching programme. Objective: To establish a community of practice by developing a PPI coaching programme for senior and junior health services researchers of Zuyd University. The context consisted of research projects conducted by the participants. Methods: A participatory action research methodology. Data were collected from reports of thematic group meetings and individual sessions with participants, field notes and regular reflection meetings with the project team. Data were analysed by reflexive deliberation. Findings: The programme comprised a kick-off meeting (52 attendees), followed by 7 group meetings with 11 junior and 9 senior researchers. The project team constructed a serious game based on the concept of the participation ladder. Questions and concerns differed for junior and senior researchers, and separate tailored meetings were organized for both groups. Between group meetings, participants received individual assignments. Group meetings were accompanied by individual coaching sessions to provide tailor-made feedback. The programme concluded with a combined meeting with all stakeholders. Conclusion: Building a community of PPI practice through action research facilitates the development of a coaching programme that fosters social learning, empowerment and the development of a shared identity concerning PPI. The role and responsibilities of senior researchers should be distinguished from those of junior researchers.

Jointly discussing care plans for real-life patients

Background Interprofessional education is promoted as a means of enhancing future collaborative practice in healthcare. We developed a learning activity in which undergraduate medical, nursing and allied healthcare students practice interprofessional collaboration during a student-led interprofessional team meeting. Design and delivery During their clinical rotation at a family physician’s practice, each medical student visits a frail elderly patient and prepares a care plan for the patient. At a student-led interprofessional team meeting, medical, nursing and allied healthcare students jointly review these care plans. Subsequently, participating students reflect on their interprofessional collaboration during the team meeting, both collectively and individually. Every 4 weeks, six interprofessional team meetings take place. Each team comprises 9–10 students from various healthcare professions, and meets once. To date an average of 360 medical and 360 nursing and allied healthcare students have participated in this course annually. Evaluation Students mostly reported positive experiences, including the opportunity to learn with, from and about other healthcare professions in the course of jointly reviewing care plans, and feeling collectively responsible for the care of the patients involved. Additionally, students reported a better understanding of the contextual factors at hand. The variety of patient cases, diversity of participating health professions, and the course material need improvement. Conclusion Students from participating institutions confirmed that attending a student-led interprofessional team meeting had enabled them to learn with, from and about other health professions in an active role. The use of real-life cases and the educational design contributed to the positive outcome of this interprofessional learning activity.

Patient participation—What is it?

Barriers and facilitators with medication use during the transition from hospital to home

BACKGROUND: During transitions from hospital to home, up to half of all patients experience medication-related problems, such as adverse drug events. To reduce these problems, knowledge of patient experiences with medication use during this transition is needed. This study aims to identify the perspectives of patients on barriers and facilitators with medication use, during the transition from hospital to home.METHODS: A qualitative study was conducted in 2017 among patients discharged from two hospitals using a semi-structured interview guide. Patients were asked to identify all barriers they experienced with medication use during transitions from hospital to home, and facilitators needed to overcome those barriers. Data were analyzed following thematic content analysis and visualized using an "Ishikawa" diagram.RESULTS: In total, three focus groups were conducted with 19 patients (mean age: 70.8 (SD 9.3) years, 63% female). Three barriers were identified; lack of personalized care in the care continuum, insufficient information transfer (e.g. regarding changes in pharmacotherapy), and problems in care organization (e.g. medication substitution). Facilitators to overcome these barriers included a personal medication-counselor in the care continuum to guide patients with medication use and overcome communication barriers, and post-discharge follow-up care (e.g. home visits from healthcare providers).CONCLUSIONS: During transitions from hospital to home patients experience individual-, healthcare provider- and organization level barriers. Future research should focus on personal-medication counselors in the care continuum and post-discharge follow-up care as it may overcome communication, emotional, information and organization barriers with medication use.