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Patients living at home who suffer from Korsakoff's syndrome (KS) need highly specialistic care from competent healthcare professionals who can bridge the gap between specialistic and generalistic care. Patients suffering from KS lack insight into their illness and often do not have any care demands for themselves. A voluntary admission is not at issue.However, they need professional care due to physical and mental deterioration and without help they will literally drink themselves to death. An involuntary admission is only possible when the criteria mentioned in the Dutch Compulsory Admission Act (BOPZ) are met. Generally, the presence of KS is insufficient to consider a mental disorder, which means that an involuntary admission will not be possible. The only possibility for this group will be extramural healthcare.In 2020 two new acts will replace the BOPZ. The Compulsory Mental Health Care Act (WvGGZ) and the Care and Compulsion Act (WZD). The WZD can be applied on patients suffering from Korsakoff's syndrome. Both acts offer the possibility to apply coercive home healthcare.Healthcare professionals working with patients suffering from KS note that they are missing experience, skills and information about working in an extramural setting. What competencies do they need to provide good care for people with KS? New challenges are created when the new legislation has to be applied. This research project investigates, firstly, what good extramural care is for patients suffering from KS. Secondly, what competencies extramural healthcare professionals need in order to provide care that increases the quality of life of people with KS, meet the needs of people with KS and their informal caregivers, and takes into account the human rights of these patients.
ABSTRACT: Introduction: The literature shows that Korsakoff’s syndrome is associated with a wide range of severe comorbid somatic and psychiatric health problems that lead to care needs in several domains of functioning. Aim: To provide a comprehensive overview of Korsakoff patients’ health conditions and related care needs. Method: Following the PRISMA guidelines, we searched MedLine, PsycInfo, Cochrane Library and CINAHL up to January 2019. After applying our inclusion criteria, two reviewers independently selected the studies, extracted the data, and assessed methodological quality. Results: Twelve articles were included. The commonest somatic comorbid conditions were liver disease, cardiovascular disease, COPD and diabetes mellitus. The commonest psychiatric comorbid conditions were mood disorder, personality disorder and psychotic disorder. Anxiety, aggressive/agitated behaviour, depressive symptoms and care needs in social functioning and (instrumental) activities of daily living were also very commonly reported. Discussion: In patients with Korsakoff's syndrome, somatic and psychiatric comorbid conditions co-occur with behavioural and functional problems. They are compounded by patients’ poor self-awareness regarding their health status and functioning. Adequate responses to their care needs require high-quality integrated care.
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Aim of the proposal and urban challenge it addresses* (max 200)The aim of this proposal is to develop an educational program with the provisional name ‘Care and Law’. The aim of this multidisciplinary educational program is to increase the knowledge of future professionals working at the intersection of health, wellbeing and law in the urban environment of Amsterdam.In the Amsterdam metropolitan society, legal and healthcare professionals (including social workers) are increasingly confronted with issues at the intersection of (health)care and justice. Special areas of interest are the problems surrounding people suffering from a mental illness, youngsters that cause nuisances of themselves on the streets and homeless people. The approach to this kind of problems requires a multidisciplinary approach. This means that healthcare, social welfare and legal professionals have to work together, for instance to apply for involuntary care. However, these professionals all have their own perspective and responsibility in these situations which often results in tensions among the professionals and as a result a delayed provision of care (van den Hooff, 2015).External partner(s) (if applicable) Project description abstract (max 750 woorden)We like to develop a new educational program in which students from different faculties work together on real time cases. At this moment, students at the Faculty of Applied Social Sciences and Law and the Faculty of Health are primarily trained in a monodisciplinary manner. They may be better equipped for their future work, if they get interdisciplinary training and courses. They need to learn what is meant by ‘Transcending Responsibility’; which means to be open to the perspective of the others professionals and to create a new shared responsibility (van den Hooff, 2015).In this project, we like to work together with and learn from the expertise of other members of the consortium to enhance the quality of this educational project. The focus of the present project is to develop a new multidisciplinary educational program surrounding legal and care related themes. The idea is to familiarize students with the legal contexts in which they have to operate (for instance themes related to pressure and coercion) as well as the welfare and care context in which the client/patient is situated (the care from neighborhood teams, youth care teams or mental health care teams). In addition, student might jointly develop integrated approaches based on case studies from the professional field.We like to be inspired, informed about and discuss innovative approaches which make interdisciplinary educational programs possible. Maybe it is possible to develop an international educational program with members of the consortium.
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